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                    <text>THE VOICE OF TEXAS CRIPPlED CHIlDREN

7

Special Education 0 0
The Next Step Forward
0

"IF I COULD only go to school," is
A the pitiable plea one hears time
and again from crippled children from
six years of age upward. "If I could
only be like other children!"
The problem of education worries the
intelligent and alert child who is unable
to secure it much more than it does his
elders who may be devoting more attention to the physical or economic aspects
of his case. Over and over one reads
in case histories: "Attitude of child—
Anxious about inability to attend
school."
Sometimes the problem is solved by
an operation which makes the child
whole and allows him to resume life and
education in a normal manner. Many
times there is no complete cure possible,
or a long intermediate period of recovery is required, or nothing at all can be
done to change the crippled condition.
In such cases, the regular school is
no place for the little cripple who cannot
play with his classmates unless they
take special care not to hurt him, who
cannot get to and from school without
special assistance, and who oftentimes
cannot even sit comfortably in the regular school desks.
Special provision has not been made
to date in normal classrooms for these
unfortunate children. Rather, adjustments, if any, are made by the crippled
child himself, an inconsiderate and inhuman way of managing the situation.
Suppose the child is confined to a wheel
chair. Very few or no schools have facilities for getting wheel chairs up or
down stairs, and, even so, not many
youngsters who cannot walk have the
strength to sit in a regular school desk
or classroom all day long.

M

OST TEACHERS are as considerate as possible of the handicapped
child and give him special edvantages
and care, but the fact is indisputable
that this haphazard system is faulty in
the extreme, and besides being of only
casual value to the handicapped child is
also unfair to the normal student who'
may be ignored or slighted more than
he deserves in order that the teacher
may devote more time to the retarded
student.
This is not to say that many physically
unsound children are not as intelligent
and perhaps even more so than their
sturdier playfellows, but their comparative lack of strength prevents their
keeping up their studies at the same
rate of speed as the healthier ones. Take
for example the spastic child, who may
be thought a dullard and remain one if
aid is not given him, but who, with instruction in the coordination of muscles
and encouragement from an understanding teacher may develop into one of the
most brilliant men of his day, overcom-

ing his early handicap entirely; otherwise, he might always have been forced
to remain in a low mental and occupational class.
The first spastic paralysis clinic ever
held in Texas was held December, 1936,
in Port Arthur, with the astounding result that from on county
alone,prximtysv-fepaichldrn
reported. There is a spastic paralysis
class in the Thomas W. Hughen's Crippled Children's School there with almost
twenty pupils having enrolled since it
started.
"Education for all the children of
all the people," is almost a stereotype in
any educator's vocabulary now, but the
practice of the preaching is sadly lacking
when accurate knowledge of the number
of children needing aid is so limited as
to be almost confined to guesswork, and
when funds appropriated for the education of all are turned into the general
fund for normal children, leaving the
cripples without consideration of any
kind.

W

ACO is one town which is not doing
this, but is using its per capita
scholastic apportionment for all children
alike. Special classes are held for the.
cripples, and those who are bedridden
are visited for an hour a day by special
instructors.
People who object to the spending of
extra money for the education of these
children have failed to consider the farreaching results of intelligent care for
them now. A crippled infant presents
only a physical problem, but by the time
a child is 6 years old, he becomes a physical and social problem, and when he
reaches his late teens, he has become an
economic problem as well unless something is done to provide him with the
educational means with which to provide
for himself.
It is estimated that there are about
two million physically handicapped children in the United States who are different enough from other children to
make special schooling a distinct advantage and necessity for them. Some
few efforts have been made, but so far
only about one-tenth of this total has
been reached for this purpose. Schools
such as that in the Oklahoma Hospital
for Crippled Children, which has two
teachers and two occupational therapists
and gives instruction at the bedside as
well as in the classroom, or the William Jennings Bryan School for Crippled
Children, which teaches grades one to
nine in a special building with rooms
devoted to occupational physiotherapy,
are all too few and scattered.
Some of the Texas hospitals, such as
John Sealy in Galveston, provide excellent training for the children while
they are in school, but on a very limited
scale. A very fine occupational therapy

department is maintained in some of the
Texas hospitals. For the last year or
so the State Department of Education
has been endeavoring to get a Special
Education Department set up within its
jurisdiction, and efforts are still being
made toward that end, but no results
can be reported as yet.

IN

THE United States all sorts of
physical aid have been given crippled children, but nowhere heretofore has
there been a provision for their education made. An attempt to correct this
delinquency is being made in the PepperBoland Bill presented in Congress for
the purpose of educating physically
handicapped children. The bill would
provide an annual appropriation of $11,580,000 to be distributed as follows:
1) $40,000 to go to each state, without
restriction and without the necessity of
being matched.
2) $9,000,000 to be distributed among
the states on a basis of the ratio of their
scholastic population to the total scholastic population of the United States, this
amount to be matched by the State's
expenditure for the education of physically handicapped children, over and
above its expenditure for normal children.
Whether or not the bill is passed, there
are certain things which can be done now
which will help the status of crippled
children, in any event, and the Texas
Society for Crippled Children urges the
observance of the following suggestions:
1) Cooperation with state authorities
in the provisions of the Social Security
Act insofar as they affect crippled children.
2) Cooperation with state authorities
in the provisions of the Vocational Rehabilitation Act insofar as they affect
crippled children.
3) Cooperation with school authorities
in the establishment of demonstration
centers for the crippled child.
4) Demonstration of the value of home
instruction for the crippled child who
cannot attend school.

H AZEL

C. McINTIRE, director of
special classes in the Ohio State
Department of Education, says: "In the
years of experience we have had in this
work we have known but one district
that opened a class with local funds
entirely; in all other instances they have
been dependent partly on state aid. So
it seems to me necessary we have federal
aid if we are to take care of these
children."
It should be borne in mind that the
mind and spirit, more sensitive than any
member of the body could ever be, are
the most often neglected because of their
obscurity and intangibility. Any observer can recognize the necessity of re(Continued on Page 13)

�8

THE VOICE OF TEXAS CRIPPlED CHIlDREN
BEHIND THE SCENES IN OUR HOSPITALS

�THE VOICE OF TEXAS CRIPPLED CHILDREN

9

Over 800 Children Need Your Help
"I want to tell you how much we thank
God for such an organization," a Wisconsin mother was recently moved to write
in an open letter to a state organization
which had provided for an operation
which made her child walk again.
"If ours were the only case, I would
say just as much, but I know that they
help many other children," she continued,
and the mother was right. Her child was
only one of many being cared for by a
philanthropic organization, and not only
in Wisconsin but by similar organizations scattered all over the world.
Texas has the Texas Society for Crippled Children, which, since its beginnings, ten years ago, has enabled hundreds of children to walk again, to play
again, and to live normal, happy lives
in a world miraculously set aright for
them.
But the help which the Society can
render children is proportionate to the
number of active members it has and is
limited to the extent that its membership
is limited. And the Society is limited
right now to facing the fact that over
800 crippled children in Texas need help
in hospitalization and care (these figures
are from the records of the Crippled
Children's Division in the State Department of Education at Austin), and that
they cannot receive the care they need
because of a lack of funds.
A lack of funds means one thing: a

lack of interest. Apathy is almost a
worse enemy of crippled children than
the disease or accident which struck them
down. No one, personally approached,
we believe, would even consider refusing
to contribute to the furthering of a
project designed to help these children
get the treatment and care they need.
The flaw lies hi that not enough people are approached. Not enough even
know that the Society exists, and they do
not understand its purpose and its workings when they do know of its existence.
One minute's devotion to the telling of
the cause behind the founding of this
organization, and a ;new member would
be conscripted, and another child given
a new lease on life. A popular safety
slogan is: "Spare a second, save a life."
We suggest that it should also be: "Spend
a minute, save a life."
The Texas Society for Crippled Children proclaims a cause which calls for
the assistance of volunteers; and volunteers are not lacking, we believe, if
the call is only issued forcibly enough.
A few days ago, a University boy, presumably one of the most blasé young
men on the campus, listened intently
when he was stopped to discuss a crippled
child's problem.
"Why, yes," he said, when his assistance was asked in a certain capacity.
"I'll be glad to do it. No, I wouldn't

IN THE PICTURES
Convalescent children play and take the sun in this special play yard on the
hospital grounds, upper left, in company with other small patients who appreciate
the temporary change from hospital rooms and sun porch to the earth and grass
and breeze.
Directly beneath, a group of youngsters gather about the lady who reads those
exciting and charming stories to them. Notice the look on the face of the little
boy to the far left.
Basket weaving is one of the most popular and beneficial exercises little fingers
can be put to doing to recover lost dexterity, or to learn to manipulate hands
and wrists never used before.
The playroom, in this hospital, lower left, is fitted like a well-planned nursery,
except that the things which might be mere toys to a normal child are essential
to the development of these children, who are taught to play with the toys that do
their individual cases the most good. Note the braces on the legs.
These cheerful youngsters laugh at visitors all day long, and they laughed into
the camera, despite the fact that they are confined to their baby beds or are under
the constant supervision of doctors and nurses.
The two boys and five baby boys taking a sun bath in the next picture were
victims of poliomyelitis, infantile paralysis. By receiving early treatment, that is,
by being placed on frames and in splints and given essential exercises, they will
avoid the bad deformities found in older children who did not have the opportunity
of such care. Many operations on feet, knees, hips, shoulders, wrists, and spines
would need never be performed had early treatment been available. The casual
visitor may shed a tear at seeing babies thus tied down, but the babies are contented, having individual care as near as possible to that which their mothers
would give them. When the weakened muscles in abdomens and legs are strong
enough, they will be put into braces and taught to walk.
An airy hospital roof, with its smooth floor is a recreational center for wheel
chair patients. Just below, it's bedtime story time for those who are scarcely
more than babies and who miss the "tucking-in" their mothers would give them,.
but not so much as they would were it not for workers who see that they are kept
amused and busy most of the time.
The boy with his left hand in bandages, bottom right corner, may not be able to
play baseball for a long time to come, but in the meantime he is learning the quiet
pleasures of a domino game, and the little girl on the bed is finding that checkers
can be quite as fascinating as many of the other recreations she is denied while
doctors and nurses are doing all they can to correct her physical defect.

think of taking pay for a job like that.
I'm glad to help any way I can."
Everyone else feels like that too, we
are sure. We must only get to them all,
tell them our purpose, outline our plans,
explain our needs, and we will get their
help.
This is your job. You, as a member,
or as someone vitally interested in helping crippled children, must do this task
if it is to be done. Make it your pleasant deed for the day to get a new
member to send in his two dollar fee.
Following are some excerpts from letters in the files of the Crippled Children's
Division, State Department of Education, from parents and children who are
grateful for the help given them in the
correction of physical defects. We quote
these letters to show you the real depth
and sincerity of feeling these people
have where the aid given their children
is concerned, and the gratitude the children themselves feel.—Editor.
"I am writing you, to let you know
that my child, is improving very much.
She has had two operations, and right
now is learning to walk. I am again
thanking you for your help, to correct
my child from being a cripple."
"Just a few lines to thank you for
your kindness and your gratitude for
giving my son the free trip to Galveston.
We thank you with all our heart. God
blessed you for your kindness."
"Through neglect I have not abided by
your request in your letter of November
18, 1938, that I keep you informed from
time to time on the progress of my
daughter and the benefits derived from
treatments. . . . But I assure you that,
though I have failed to show my appreciation by not writing you, I do appreciate
it to the utmost."
"We take this means to thank you for
what you have done for the benefit of our
son. . . . We appreciated it very much
and pray that God will bless you in your
efforts to help other crippled children
and hope someday he will be able to walk
without the aid of a brace."
"My husband and I wish to extend to
you our sincere thanks for your promptness in handling the case of our daughter. . . .
"We are also grateful for the kind and
courteous treatment she is receiving at
the . . . hospital.
"With sincere thanks and best wishes
for success in your great work. . ."
"I am writing in regard to your letter
referring to our daughter. . . .
"We wish to send our thanks to you
for your help in getting her in the hospital.
"We. . . . will be there the 15th. . . ."
"I am sure you recive many, many
letters of thanks from the children that
are benifited through your department,
(Continued on Page 13)

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                    <text>10—LABOR'S DAILY, Saturday, December 4, 1954

American Federation for
Handicapped Sets Plan
By Labor's Daily News Service

WASHINGTON—Proposals for an inter-departmental committee on selective job placement of the handicapped, and for a one-year pilot program in Pennsylvania leading to a
nation-wide program of fitting the home-bound handicapped for work, have been put forward by the American Federation of the Physically Handicapped.
AFPH President Paul A. Strachan outlined his home-bound training plan to the Office
of Vocational Rehabilitation of the Federal Health, Education and Welfare Department and
to Rep. Augustine B. Kelley
(D-Pa.), who is in line to head OVR that that agency's outline of tific matching of handicapped perabilities and jobs needing
a House Labor Subcommittee services to be considered were sons'
"okay as far as they go" but not such abilities, he said.
on the handicapped as he did sufficiently specific.
But from the trial-and-error
in the mid '40s.
He insisted that "medical treat- "certain facts" developed, he conThe 1954 Congress ordered Welfare Secretary Hobby to report in
six months on problems of homebound or bed - bound physically
handicapped persons — commonly
known as "shutins." The report
request was a substitute for
Kelley's Amendment providing for
a grant-in-aid program now.
Mrs. Hobby was ordered to study
existing programs for teaching and
training such persons to determine
if additional programs are needed
especially in rural areas. She
turned the job over to OVR. OVR
asked AFPH and other organizations for suggestions.
Strachan noted in his reply to

SEND
IN
YOUR

CONTRIBUTION

AMERICAN FEDERATION OF THE
PHYSICALLY HANDICAPPED, Inc.
1370 National Press Building
Washington 4, D. C.
Enclosed is check or money order for $
a contribution to further your Organization's program in behalf of the
Handicapped.
Name
Address
City

Zone

State

tinued.
There now is an Occupational
Directory covering 25,339 different
jobs, with specifications for them.
"We have shown that approximately 9,000 of these 25,339 jobs
can be satisfactorily filled by the
variously handicapped—the blind,
partially sighted; deaf, hard of
hearing; arthritics; amputees; cardiacs; cerebral palsied; diabetics;
epileptics; victims of muscular dystrophy, multiple sclerosis; polio;
rheumatism, etc., including conPilot Program
genital defects and deformities.
"Now we must take the essence
Noting that the full development of what we have learned and use
of the plan would ultimately cover that knowledge," Strachan contineach of the nation's 66,000 school ued.
districts, he proposed that for a
Coordination Urged
year or so a pilot program be
started in one state to work out
He suggested coordinating the:
the "bug."
1—United States Labor DepartBecause Pennsylvania is large, ment's Bureau of Employment
has diversified population and "is Se-curity's occupational directory diabout equally divided between man- vision which developed the direcufacturing, mining and farming" tory.
2—United States Civil Service
he suggested that that state be the
Commission which he credited with
locale of the pilot program.
To cut estimated $330 million developing the "shape up" of the
costs of sending teachers into the 9,000 jobs the variously handihomes of all the nation's home- capped can fill.
3—The VA's Department of
bound, Strachan suggested use of
the "audograph" sound recorder Physical Medicine "which has carand transcriber on which lessons ried on more programs for rehabilicould be recorded by specialists tation . . than any other public
and on which pupils could then agency and has the power and
transcribe their answers for return capacity to enlist the support and
coordinate the knowledge of priand correction.
vate industry. . . ."
He declared that a few years
4—The Public Health Service
ago he found by querying the Postwhich he said "recognized the immaster General and congressional
portance of proper placement of
committees on post office that a
handicapped as requisite to suc-proposal to provide postage-free
cessful rehabilitation" and has the
delivery of audograph lessons for
experienced physicians, surgeons
the home-bound would win apand therapists.
proval. Strachan said he believes
The coordination proposed by
the same situation would be true
Strachan would be through a contoday.
gressional law setting up a joint
Home-bound persons could be committee to survey and determine
located, he suggested, by consult- proper selective placement of haning the letter carriers, local unions, dicapped.
farm organizations, medical
The committee would have an
socie-ties handicapped associations and authorized budget of $10 million
so forth.
to start with for taking each of
Strachan's proposal on coordina- the 25,339 jobs and "breaking it
tion of selective placement ran down to the potentials of what a
like this:
handicapped individual might do,
Progress has been slow during in his present state of disability,
the past 121/2 years in_ federal ex- or might do if properly treated
periments and programs on scien- and trained. . . ."
ment, when needed, accompany
training of home-bound handicapped, or else—in all too many
cases—training will not be of avail,
because the individual will not be
physically able to undertake and
go through with it."
He proposed also that aptitude
testing be used for the person
being trained and that all efforts
in training and treatment be aimed
at enabling him to earn his own
living in whole or in part.

�-LABOR'S DAILY, Saturday, December 4, 1954

Good Record of
CIO Is Obvious
By Labor's Daily News Service

When the CIO convention delegates begin hammering
out CIO welfare program policies for the new year, they will
have behind them a long and brilliant CIO record in the fields
of health and safety, social security, housing and related
subjects.
They will approach their task with experience—experience developed in the shops and in wage-earners' homes, in
union health clinics and welfare f u n d s, hi legislative
battles in city councils, state
legislatures and Congress, and
in work with governmental agencies and private organizations,

Health Benefits
The health field alone provided
tremendous range of activities
for CIO unions, councils, committees, and individual members and
officers.
CIO helped pioneer for new
forms of economics in medical
care, to make modern medicine
available to the people when
needed without charity and without bankruptcy. Its fight here too
was one against well-heeled forces
led by the American Medical Association and their insurance industry allies.
It was a fight for national health
insurance, for federal aid in the
training of adequate numbers of
doctors and other health personnel, for public aid to hospital construction, for maternal and child
health aids, and for federal aid to
local public health services.
CIO unionists participated in,
and sought to improve, Blue Cross
plans while others built union
health centers.
They carried on health work in
other fields too — work for improved industrial safety and health
measures, for vastly expanding and
improving the vocational rehabilitation of injured wage earners,
for inspection of metal and nonmetal mines and quarries and
establishment of a safety commission in the United States Labor
Department and for improvement
of state workmen's compensation
laws.
They worked with private organizations like the American Federation of the Physically Handicapped, the American College of
Surgeons, the National S a f e t y
Council, the National Society for
Prevention of Blindness and with
various governmental agencies too.
But they had to fight against
"economy" f or c es which have
whittled health appropriations to
save a few millions—while billions
were lost through ill-health and
injury.

-LABOR'S DAILY, Tuesday, December 7, 1954 _

a

'Handicapped'
Group Is Given
AFL's Support
By Labor's Daily News Servic

WASHINGTON — AFL Legislative Committee Member Walter
Mason has been named by AFL
President George Meany as representative to the legislative conference of the American Federation of the Physically Handicapped
to take place here Dec. 21.
In Meany's letter accepting the
AFPH invitation to participate in
the conference on handicapped legislation, the AFL chief noted that
"I share your interest in the real
need of an adequate physically
handicapped program" and pledged
AFL's continued cooperation and
support.
Meany sent AFPH a copy of the
resolution adopted by the AFL seventy-third convention at Los Angeles Sept. 20-27, remarking that
copies of it have been sent to the
press, to all members of the AFL
Executive Council, and to all interested organizations and individuals.
"You will note," said Meany to
AFPH President Paul A. Strachan,
"that the resolution calls upon All

AFL constituent labor bodies to
lend legislative support, and, if
possible, to make substantial contributions, financially, to the
AFPH."

Resolution Passed
The AFL convention resolution
recalled that "organized labor initiated, and has consistently fought
for programs to advance the welfare of all workers, and 34 years
ago the American Federation of
Labor was chiefly responsible for
establishing the federal-state vocational rehabilitation program."
It noted further that AFPH for
the past 14 years "has spearheaded
all activities beneficial to (physitally) handicapped, and has had official endorsement of organized
labor, and has many eminent leaders of labor among its national officers."
It reviewed the enactment by the
83d Congress of the bill expanding the federal-state vocational rehabilitation program. AFL ,commented that the AFPH "with
close cooperation from its labor
allies, succeeded In amending this
bill in major particulars, so that
the entire program, roughly, will
be expanded to more than three
times its present scope."
previous
posed legislation especially measuures to establish a Federal
Agency for Handicapped, and to
provide tax exemptions for handicapped who can't support themselves.

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                    <text>,j c~~ITION OF TEXANS ''
IWITH DISABILITIES

1111

w
Summer 1988

COMPREHENSIVE CIVIL RIGHTS LAW
FOR PERSONS WITH DISABILITIES
INTRODUCED IN CONGRESS
On April 29th the Americans with Disabilities Act (ADA)
was introduced in both the House and Senate. This extremely
important piece of legislation would prohibit discrimination
based on disability. This act addresses much broader areas
than those covered by Section 504 of the Rehabilitation Act of
1973. The bill, co-sponsored by Senators Lowell Weicker,
Thomas Harkin, Ted Kennedy, and Bob Dole, and Congressmen Tony Coelho, Silvio Conte, Major Owens and others,
would prohibit discrimination on the basis of disability by
employers with 15 or more employees; housing providers
covered by federal fair housing laws; those offering services
considered to be public accommodation; transportation comanies; those engaged in broadcasting or communication; and
· e and local governments. This broad coverage is similar to
u1e scope and coverage of the major civil right laws which
prohibit discrimination on the basis of .race, sex, national
origin, religion and age.
The ADA specifically defines discrimination, including
various types of intentional and unintentional exclusion; segregation; inferior services; barriers; failure to make reasonable
accommodation; and discriminatory qualification and performance standards. The bill also defines what is not discrimination, such as that which is the result of legitimate application
of qualification and performance standards which are necessary and substantially related to one's ability to perform or
participate in the essential components of a job or activity.
The bill will not repeal Sections 503 and 504 of the Rehabilitation Act of 1973, and all regulations issued under those
sections will remain in effect. In addition to addressing areas of
disability discrimination not yet covered by Federal law, the
act also spells out those agencies responsible for developing
regulations and accessibility guidelines necessary to implement the act as well as specifying enforcement procedures.
Most supporters of the bill expect a long fight to get the ADA
passed. With the fall elections and accompanying recess of
Congress in early October, the bill will probably not receive
serious attention until next year. Nonetheless, the push to pass
this legislation should be started NOW. Make ADA a campaign issue in the Congressional and Presidential races. Force
· f c~~didates to ~come a.ware of ADA's importance to the
"''sab1hty community and its supporters; ask the candidates
repeatedly about their position on the bill. These tactics will
lay the groundwork for successful and speedy passage of
ADA.

Americans with Dlsabllltles Act Day In Austin attracted many
disabled people from around the state.

ADA DAY IN AUSTIN
On July 12th over 150 disabled persons from around
Texas gathered in Austin to testify in support of the
Americans with Disabilities Act (ADA), as well as to tell
of the discrimination they have encountered because of
their disabilities. Justin Dart, co-chair of the Task Force on
the Rights and Empowerment of Americans with Disabilities, recorded the testimony and will present it to Congress
to dramatize the need for broad based civil rights protection for persons with disabilities. CTD was one of twelve
agencies and consumer groups sponsoring the forum. CTD
worked to ensure consumer representation at ADA day.
As evidenced by the turnout, the day was a big success.

GCDP CALLS FOR EMPLOYMENT
AWARD NOMINATIONS
The Texas Governor's Committee for Disabled Persons
(GCDP) is now accepting nominations for its employment
awards program. The program recognizes individuals and organizations who make otttstanding contributions to the employment of persons with disabilities. Those interested should
make nominations through their local mayor's committees for
disabled persons before August 15th or contact Virginia Roberts
at (512) 445-8276 for more information.

�ISSUES PRIORITIZED
BY SYMPO '88 PARTICIPANTS

PRESIDENT'S MESSAGE

0

Over three hundred deaf consumers, parents of deaf c
dren, professional providers for thedeaf and friends of the
convened in Austin March 11 and 12, 1988 for the Fifth Statewide Symposium on Deafness and Hearing Impairment which
was sponsored by the Texas Association of the Deaf. The motto
of Sympo '88 was "Leadership, Service, Where are they?"
Out of over 100 issues brought to the event by participants
from every comer of the state, twelve issues were finally
prioritized with six being legislative and the other six nonlegislative.

FRANK LOZANO
The cues I've had from people in CTD have all been
good, strong messages to be more involved in changing society as it relates to persons with disabilities. I
first heard about CTD in El Paso in 1983 from Barbara
Ramirez-Parker, one hell of a rehabilitation instructor with the Texas Commission for the Blind. I found
in CTD a righteous group working to build access into
power systems via cross disability consumer advocacy. I became aware of a larger population of people
with disabling conditions who are very oppressed
and very passive. Since my crash in 1983, I have been
able to follow some good messages about rehabilitation and recovery to start working on supporting
myself and supporting others.
I am a full time community organizer with Atlantis
Adapt of Dallas, part time student of social work at
UT Arlington with Texas Commission for the Blind
support, and a visitation father to Alisa Dawn, 12, and
David Efrain, 8. My organizational involvement and
education on the board of CTD moves through a new
stretch for the rest of this term.
As I voice this message, I think of Steve Johns
cruising to California to break new ground. He's a
good friend carrying positive energy into all of his
work and delivering with both style and content. As
President I'll want to remember his example in running effective meetings. I look to the membership for
guidance during my service as your President with a
very connected board committed to real advocacy.
We have a new Executive Director-Alan Meyer,
who is already cutting the rug with new development. Carole Patterson is filling our community
Advocacy Director position and brings with her much
energy and talent.
Too many of us have accepted limiting conditions
in our world and too many of us are afraid of change.
I believe that now is our time, our chance, to take an
active part in this changing environment. Whether
the changes are physical, social or emotional, our
attention is important to make realistic plans and
carry through with action steps. The political and
economic powers that control our lives are awesome,
and only the power of people united can ever tip the
scales toward the sense of our common good.

LEGISLATIVE

1. Recommend funding be secured from general revenue or a
Public Utilities Commission surcharge for the expansion/
improvement of statewide relay services (13S votes).
2. Support the development and provision of comprehensive
mental health and mental retardation services for individuals
provided by TDMHMR, including employment of skilled
mental health professionals in the field of deafness, comprehensive mental health assessments and direct services and,
when necessary, the use of certified interpreters skilled in the
field of mental health interpreting, and mandate the development of MOU between TEAand TDMHMR to provide services
for mentally ill, emotionally disturbed, and suicidal deaf and
hearing impaired students. All services to include in-patient,
out-patient facilitates, and other services as needed. (137 votes)
3. Recommend that the legislature increase funding for all
direct services and addition of case management service
councils provided by TCD. (126 votes)
4. Recommend that Sympo '88 appoint an appropriate liaison
to work with the legislature to obtain greater funding for TEA
and TSD deaf and hearing impaired education programs. (81
votes)
S. Recommend that Texas legislature require that hospitals and
medical facilities budget for and obtain certified interpreters
defined under the rules of the BEi and RID. (72 votes)
6. Recommend that ASL be incorporated into "essential
elements" as revised in 1990 (Chapter 7S) and that ASL be
accepted asa foreign language offered to both deaf and hearing
impaired adults and deaf hearing impaired students. (71 votes)
NON-LEGISLATIVE
1. Recommend that TEA approach the University Coordinat-

"The fundamental and only legitimate purpose ofhuman society is
to provide the services, resources and environment necessary to
enable each of its members to achieve his or her full potential for
productivity and quality of life, for self and for all. There is no higher
priority. Indeed, there is no other rational priority at all."
-Justin Dart

ing Board to:
A. Increase the number of courses and hours in sign language
required for deaf education training programs, and
B. Establish ASL as a recognized language that would meet the
foreign language requirement in colleges and universities, and
C. Offer the PPST and EXCET in ASL to those needing it or
waive them entirely to all deaf. (SS votes)
2. Recommend that TEA establish a committee to develop sign
language competency standards for diagnosticians and psychologists serving deaf and hearing impaired students. (46
votes)
3. Recommend that TEA provide continuing education in bf __
ASL and Signed English for teachers and professional supp,_.
staff. (42 votes) continued on following page

Page2

�1988 RESPITE SERVICES
rilRECTORY AVAILABLE
e 1988 Respite Services Directory is a resource guide for
pite programs located in Texas. The directory is published
by Texas Respite Resource Network (TRRN) and is now available for distribution. TRRN, a model clearinghouse, provides
respite care information and technical assistance. TRRN is a
special effort of Project Any J;!aby ~an and is funded through
a grant provided by the Texas Rehabilitation Commission on
behalf of the Texas Planning Council for Developmental Disabilities.
The updated TRRN resource directory lists 116 respite programs alphabetized by city and includes a cross reference
index by county. Each entry identifies respite care by type of
program (in-home, residential, host-family, and facility or
medical-based), location served, client served, contact person
and fee schedule. Special features of the programs are highlighted. In addition, the updated directorycontains44 services
not listed in the previous directory.
Respite services listed in the directory have met the following criteria:
1) Respite care focuses on providing "relief" to
the family and/ or primary caregiver;
2) Respite care concentrates on meeting the
individual's basic needs in a supervised, nurturing environment; and
3) Respite care services are offered to families
caring for their family members with developmental disabilities at home.
o obtain copies of the directory, send a written request to:
Texas Respite Resource Network/ Children' sAmbulatoryCare
Center, P.O. Box 7330, Station A, San Antonio, Texas 78285.
There is a $5.00 charge per copy to defray printing and handling costs. Please make checks or money orders payable to
SRHCC/Texas Respite Resource Network. For more information, contact TRRN at (512) 228-2794.
1

Symp0 88 continued from preceeding page
4. Recommend that TAD establish an MOU or contract with
TCD to develop materials for training hearing impaired on
their rights for quality medical services and how to exercise
these rights and to provide this training to deaf and hearing
impaired adults. Additionally, that TAD share this information and materials with TEA for education and training of high
school students for adulthood. (38 votes)
5. Recommend that the deaf and hearing impaired community
support the establishment of an office that can promote and
advocate for the issues of concern to deaf and hearing impaired
people. Qualified deaf people and those with hearing impairments be sought to staff their office. (37 votes)
6. Support memorandum of understanding between TCD and
Texas Commission on Alcohol and Drug Abuse (TCADA) and
TCD and Texas Commission for the Blind (TCB) to provide
---7ices to deaf and hearing impaired, deaf/blind, including
Adren, to include training, counseling and normalization.
(32 votes)

New Community Advocacy Director Carola Patta11on and new board member Martin Thompson, attend their first board meeting.

NEW FACES AT CTD
CTD' s President Steve Johns has moved to California to take
up a new job and share some time with his family. We wish
Steve the best of luck and will miss him. Steve left the presidency in the able hands of VP Frank Lozano, commuruty
organizer with Atlantis/ ADAPT of Dallas and CTD board
member (see President's Message). The board elected Larry
Correu as new Vice President until the convention. Larry is
Executive Director of San Antonio Independent Living Services (SAILS). Martin Thompson, an attorney in Austin, has
been elected to fill a vacancy on the board. Former President
Bob Kafka and former Executive Director Stephanie Thomas
are taking a breather out of state and are expected back sometime in late September. Alan Meyer, former Executive Director
of the Houston Center for Independent Living (HCIL) and
CTD bo.a rd member, has taken over as CTD' s Executive Director as of March. Alan brings a successful history of leadership
as well as many innovative ideas to this position. Carole
Patterson started as the Community Advocacy Director in
July. Carole has been involved in disabled advocacy on the UT
Austin campus for the past 5 years. Changes completed, the
"new" CTD will work, as always, to advocate for the interests
of Texans with disabilities.

Executive Director Alan Mayer stratagizing with Norina Jaloway of The
Association of Retarded Citizens (ARC).

Page3

�NATIONAL BRIEFS
CIVIL RIGHTS RESTORATION AC
PASSED OVER VETO

PEPPER BILL KILLED
The "Pepper Bill" -home care legislation of Congressman
Claude Pepper-was killed in early June. The bill would have
provided home care for disabled and elderly citizens. The
implementation of this bill would be funded by adjusting ~e
Social Security tax paid towards Medicare by persons with
earned income over $45,000 per year. Currently, income over
this amount is not taxed for Medicare purposes. Projections
from the Congressional Budget Office (CBO) state that the
revenues of this bill would exceed its cost for at least the first
five years. The issue of long term care is receiving nationwide
political attention; this pressing issue should only be temporarily hindered by this year's defeat.

In the spring of this year, Congress overrode President
Reagan's veto to pass the Civil Rights Restoration Act of
1988 (CRRA). A major civil rights victory, the CRRA restores the broad application of the four laws preventing
discrimination on the basis of handicap, age, race and sex.
The Supreme Court's Grove City decision of 1984 had
narrowed anti-discrimination legislation to cover only
specific programs or activities receiving federal monies.
The CRRA reinstates Congress' original intention, prohibiting discrimination in every program or activity of an
institution receiving federal financial assistance. The specific program or activity does not itself have to receive
federal funds to be covered by civil rights statutes. Educational institutions controlled by religious organizations,
however, are exempted from the requirements of the bill.
Regulations for implementation of the bill are being drafted.

FRIEDEN LEAVES NCH
FOR BAYLOR AND IRLU
Lex Frieden has resigned as Executive Director of the National Council on the Handicapped (NCH). Returning to
Houston, Frieden will serve as Executive Director of the Texas
Institute for Rehabilitation and Research (TIRR) Foundation,
as well as an expert consultant with Independent Living Research Utilization (IRLU) and as community liaison for TIRR.
Frieden will also resume his faculty position at Baylor College
of Medicine. While head of NCH, Frieden developed Toward
Independence, a comprehensive report to Congress on disability related needs which is credited as the impetus for the
creation of the Americans with Disabilities Act. Frieden acted
as the director of IRLU for five years before assuming executive
directorship of NCH. NCH has appointed Paul G. Hearne to
the position ofExecutive Director, effective August 1st. Hea~e,
a legal advocate with a disability, was previously Executive
Director of an employment agency specializing in placing
people with disabilities.

SUTER NAMED NEW
COMMISSIONER OF RSA
Susan Suter has been named the new Commissioner of~ 0
Rehabilitative Services Administration (RSA). Suter's appo
ment fills the vacancy left when Justin Dart, Jr. was force o
resign last year. Previous to her selection, Suter was Director of
the Office of Rehabilitative Services in Illinois. When asked on
a Dallas radio show if she considered herself an advocate for
people with disabilities, Suter, who is disabled, answered,
''No." When asked if she wanted to become an advocate, she
also replied, "No."

HARRIS POLL ANNOUNCES
SLEEPING GIANT

GALLUDET PROTESTS
END IN VICTORY
Students at Galludet University staged protests this spring
when the university board appointed a school president who
was not hearing impaired and could not speak sign language.
Never in the university's 124 year history had a hearing impaired person served as president. The university was closed
for a full week by the student protests. Backed by a majority of
the faculty, the students demanded that newly appointed
president, Elisabeth Ann Zinser, as well as the chairwoman of
the board, Jane Basset Spilman, resign. Ultimately, the students were victorious-Zinser resigned, and both the new
president, I. King Jordan, and the new chairman of the board,
Philip Bravin, are deaf.

According to the latest Harris Poll commissioned by the
National Organization on Disability (NOD), the 36 million
disabled persons in the US constitute a potentially powerful
political force. Disabled Americans sho~ a h~gher level of
interest in political affairs than do Amencans m general yet
disabled Americans register to vote at a significantly lower
rate. Tangible and intangible barrier~. such as inaccessible
polling places or vague candidate stances on disability issues
discourage disabled citizens' participation in the political
process. In conjunction with the poll, NOD is promoting voter
registration with public figures Barbara Jordan and James
Brady. For more information about NOD's voter registration
campaign, call 1-800-248-ABLE (toll-free). For a copy of the
Harris Poll, contact: Louis Harris &amp; Associates, Infor~
Service, 630 Fifth Avenue, New York, New York 10111 (2rLJ
698-9600. There is a $5 charge per copy.

Page4

�DART AND BOGGS
HAMED AS CO-CHAIRS
":ongressman Major R. Owens, Chairman of the House
·x ommittee on Select Education, has appointed Justin Dart
u.J form and chair the Task Force on the Rights and Empowerment of Americans with Disabilities. The Task Force will be cochaired by Dr. Elizabeth Boggs, the founder of the Association
for Retarded Citizens.
The task force is responsible for collecting evidence of discrimination against persons with disabilities. Evidence documenting such discrimination will be presented to Congress to
support the need for the Americans with Disabilities Act
(ADA) and other disability related legislation. In order to
attain the rights and empowerment of people with disabilities,
the Task Force will go beyond ADA, developing additional
short- and long-range initiatives in both the public and private
sectors. The Task Force issues periodic reports to Congress and
expects to complete its final report in 12-18 months.

"This bill represents good sense, reasonable guidance and the best
public policy ... it should not be judged in terms of cost, but rather
in terms of realized potential. It should not be measured in terms
of effort, but in terms of increased productivity ... it should not be
characterized as preferential treatment, but reaffirmed human
dignity."-Congressman Jim Jeffers

HAVE YOU EXPERIENCED
"ISCRIMINATION?
As co-chair of the Task Force on the Rights and Empowerment of Americans with Disabilities, Justin Dart is issuing a call
for specific cases of discrimination experienced by Americans
with disabilities. If you or anyone you know has or does
experience discrimination due to a disability, please report it to
us. You can call or write CTD or send a letter directly to:
Justin Dart
907 Sixth Street S.W.
Apt. 516C
Washington, DC 20024
Address the letter to your US Congressperson and detail the
specific instance(s) of discrimination. End the letter by asking
if there is a law that protects people with disabilities from such
discrimination.
Dart and CTD will forward these letters to the appropriate
Congresspersons as a powerful statement in favor of the passage of the Americans with Disabilities Act.

NEW MEMBER ORGANIZATION
TEXAS POLIO SURVIVOR'S ASSOCIATION
P.O. Box 35688
Houston, Texas 77235
713/690-0695 (voice/TDD)
rontact: Jacoba Schneider
tal consumer
WELCOME TO CTD!

504 Day participants march to city hall in support of the Americans with
Disabilities Act.

DALLAS HOSTS 504 CELEBRATION
On April 29th over 250 people came together in Dallas to
mark the 15th anniversary of the passage of Section 504 of the
Rehabilitation Act. Marchers walked, rolled and otherwise
negotiated the blocked-off streets of downtown Dallas to end
up at City Hall Plaza, where speeches, exhibits and refreshments awaited them.
It was no coincidence that the Americans with Disabilities
Act (ADA) was being introduced in Washington, DC on tne
very same day. So many of the speeches, including the one
given by Justin Dart, Jr., referred to this historic piece of
legislation. The sentiment expressed by many was that Section
504 had been a great advance in the fight against discrimination based on disability and that the ADA is a chance to make
even greater progress in this direction.
At the day's conclusion, Mr. Dart held a public forum at
which numerous Texans with disabilities spoke about their
experiences and frustrations in dealing with the discrimination in their lives.

"Full dvil rights coverage. Empowerment. A continuum of seroices. This is a challenging agenda. Thousands of years of prejudice
and paternalism will not be overcome quickly or easily. We must be
prepared for a long struggle."-Justin Dart

CTD "SWEATS" IT OUT
THIS SUMMER
CTD welcomed Debbie Alvarado to
the staff this summer as a part of the
Texas School for the Blind's (TSB)
Summer Work Experience in Austin,
Texas project. The program, nicknamed
SWEAT, provides students with valuable work experience and on the job training. The students
receive a salary for their work from monies allocated through
TCB and the Joint Training Partnership Act (JTP A). Debbie, a
junior at TSB during the year, helped us out by handling mail,
Brailling information, and answering the telephones. Debbie
worked hard for us and we appreciate it.

Pages

�AROUND THE STATE
CARTER VOTED NCIL REGIONAL REP

NEW COMMISSIONER FOR TDMHJ.

Dr. Tom Carter of Disabled Ability Resource Environment
(DARE) in El Paso has been named National Council on
Independent Living (NCIL) regional representative for Region
VI. Dr. Carter is also Chair of the State Independent Living
Council which was created early this year.

Dennis Jones, former Commissioner of the Indiana Department of Mental Health (IDMH), has been named Commissioner of Texas Department of Mental Health and Mental
Retardation (TDMHMR) effective July 1st. Jones began working in mental health care in 1969 as a clinical social worker,
eventually working his way up to Commissioner of IDMH in
1981. As Commissioner, Jones plans to increase budget requests by approximately 20% in hopes of expanding community based services for the mentally disabled.

DCIL DIRECTORS DOUBLE
AS OFFICERS
Charles Cotton, Executive Director of the Dallas Center for
Independent Living (DCIL), is the new President of DATCIL,
the Directors Association of Texas Centers for Independent
Living. Meanwhile Charlotte Stewart, Deputy Director of DCIL,
is the new Treasurer of the NCIL board.

UNIVERSITY GAINS WHEELCHAIR
ACCESSIBLE BUSES
Following a well-publicized protest by disabled students,
the University of Texas at Austin has made an agreement to
contract shuttlebus service from Capitol Metro whose fleet is
between 60-80% wheelchair accessible. The University shuttle
system consists of80 buses at a cost of $3.2 million per year. The
shuttlebus system serves approximately 40,000 students each
day. Capitol Metro lift-equipped buses will be put in use in the
fall of 1989. The present shuttlebus system run by Laidlaw has
no provision for access for mobility impaired students.

BEBEE RESIGNS FROM
ADVOCACY, INC.
Executive Director of Advocacy, Inc. Dayle Bebee resigned
effective July 1st to pursue other professional and personal
interests. Advocacy, Inc. will initiate a nationwide search for a
new Executive Director in the near future.

GCDP ANNOUNCES MEDIA
AWARD WINNERS

UPCOMING CONFERENCES

The Texas Governor's Committee for Disabled Persons announced the winners of the 1988 Barbara Jordan Awards in
May. This year's recipients are Robert Nowotny, Kym King,
Janice Miles, Kenneth Frantz Davidson, Diana Weiss Davidson,
Claire Barlow Roffino, Lori Stahl, Leslie Linthicum, and KVUE
(David Little). The Barbara Jordan Awards are given annually
in recognition of individuals and organizations in the communications media whose work has increased public understanding of the abilities and problems of individuals with disabilities.

August 1-4 National Conference on Adults with
Special Learning Needs Galladet University, Washington, DC. For more information: (202) 651-5044
August 12-14 Texas Head Injury Foundation Conference Stouffer Hotel Austin, Texas. Formoreinformation: (512) 444-4835
August17-19Statewide DeafEducation/Parent Conference Worthington Hotel Fort Worth, Texas. For
more information: (512) 445-8313
Sept. 8-9 PVA Access to the Skies Conference Washington, D.C. For more information: (202) 872-1300

"We can no longer accept merely token advisory and figurehead
roles in essentially paternalistic systems. We must demand and
achieve full participation in the control of government and of all the
public and private services and processes that affect our lives."
-Justin Dart

"This is the beginning of the end of discrimination for people with
disabilities. It is our firmly held conviction that this is a movement
whose time has come."
-Sandra Swift Parrino, President
National Council on the Handicapped
Page6

Sept.14-18 National Conference on Deaf andHardof-Hearing People El Paso Marriott Hotel El Paso,
Texas. Formoreinformation:(301)585-4465V /TDD
Oct. 21-23 Coalition of Texans with Disabilities
11thAnnual Convention Westin Paso Del Norte El
Paso, Texas. For more information: (512) 443-8252
V/TDD

�~L

PASO FUN RUN

This May's El Paso Fun Run attracted a large and
enthusiastic audience as over 300 people gathered at
Burges High School track. Two radio stations and 3 local
television crews covered the day, and much appreciated
food and drinks were donated. The groups who participated in the event were CTD, ADAPT-El Paso, El Paso
Association for Children and Adults with Disabilities, El
Paso Foster Grandparents Program, the Gang Intervention Program, Texas Head Injury Foundation-El Paso,
West Texas Association for the Handicapped, and the
City ofEl Paso Accessibility Advisory Committee for the
Handicapped. This day seems to have also been a financial success, and each group will happily run away with
a portion of the total proceeds when the money is collected.
"So almost twenty-five years after the passage of the Civil
Rights Act of 1964, it's time we reach out and cover the last
group in our society that is still discriminated against and
bring them under the umbrella of dvil rights protection. It's
time to pass this legislation to extend dvil rights protection to
all handicapped persons in our sodety."

Texas Association for Children and Adults with Learning Disabilities-El Paso
Council registers its Fun Runners.
'

-Senator Thomas Harkin, Chairperson
Senate Subcommittee on the Handicapped

JOG GUIDE USER RIGHTS
AND RESPONSIBILITIES
BOOKLET NOW AVAILABLE
The Texas Commission for the Blind (TCB) has developed a pocket-size booklet that outlines the rights and
responsibilities of dog guide users in the state of Texas.
"Any Place You Take Your Eyes, I Can Take My Dog
Guide .. .It's The Law" is being made available to numerous business, industry, government and civic organiza-:
tions throughout our state.
Designed as a public service, the commission produced
this publication largely in response to inquiries from
consumers and others in search of reliable information
surrounding th use of dog guides by persons who are
blind. Although society in general appears to be familiar
with the image of a blind person using a dog guide, there
remains confusion and uncertainty regarding the legal
rights of blind persons wanting to take their dogs into
restaurants, department stores, hospitals, grocery stores,
and other public places. In many cases, business owners
fail to realize that a dog guide is not a "pet'' and therefore
cannot be restricted by regulations pertaining to other
animals.
~f you are interested in receiving copies of this booklet,
please contact TCB's Public Information Office at 1-800252-5204 (toll-free).

City Grill would like to invite you to the "Wine &amp; Dine for Austin"
Benefitfor

Coalition of Texans with Disabilities

Bring this invitation to City Grill any night until

09/15 / 88

and you

will receive a complimentary entree• and City Grill will donate twenty
percent of the check .. to

CTD.

"With the purcheM of an entree of tJQual Of gtMter v•lue. This offer Vllid alto on parties of four
(The two complimentliry entrees will be the two ie.t expensivti.)

··on the tot• 8fter compfimenl•rilil.

City Grill

not including tax, and before gratuitiM. Not valfd on holiMys. FridayS or s.turdllys.

·

4th &amp; Sabine

.

479-0817

Dinner Every Evening · Reservations Accepted

Page7

�JOIN CTD-The Coalition of Texans with Disabilities
The Coalition of Texans with Disabilities is a coalition of organizations and individuals committed to cross disability communication, cooperation and coordination. The Coalition promotes
social , educational, physical, and mental well-being of disabled Texans. The Coalition of Texans with Disabilities brings

,-

together people and organizations with similar goals in a uniti"
effort to represent all disabled Texans to government, the priva
sector, and general public. Membership in the Coalition enabl
organizations and individuals to enhance their effectiveness in
improving the quality of life for Texans with disabilities.

MEMBERSHIP APPLICATION
Individual Member
D Yearly $12.00
D Life Member $100.00

D
D

Please send me _ _ organizational memberships forms
Please send me the CTD's newsletters on cassette tape .

Please make checks payable to:
CTD
P.O. Box 4709
Austin, Texas 78765

Coalition of Texans with Disabilities (CTD) Board
OFFICERS
President
Mr. Frank Lozano, 3871 Highgrove Drive, Dallas, Texas 75220
214/902-9661, 214/350-5520
Vice-President
Mr. Larry Correu, San Antonio Independent Living Services
5101 San Pedro, San Antonio, TX 78212
512/734-9971 (w), 512/599-3327 (h)
Secretary
Ms. Patricia (Pat) Mccallum, 815 High School Drive, Seagoville, TX 75159
214/287-4974 (h)
Treasurer
Mr. Dwain McMahan, 410-B Maryland, Amarillo, TX 79106
806/352-1500 (w), 8061376-8865 (h)
Immediate Past President
Mr. Bob Kafka, 2801 Pearl Street, Austin, TX 78705
512/482-8543 (h)

BOARD MEMBERS
Ms. Willie Mae Clay, 4815 Dick Gordon Drive
San Antonio, TX 78219 5121734-9971
Mr. Martin Thompson, 7600 Woodhollow Drive #1001
Austin, TX 78731 512/343-9611 (h) 512/473-9415 (w)
Ms. Vicki Harris, 617 E. 6 112 Street
Houston, TX 77007 713/621-3703 (w) 713/863-1677 (h)
Mr. Tim Hervey, Disabled Ability Resource Environment
8929 Viscount, Suite 101, El Paso, TX 79925
915/591-0800 (w) 915/833-7403 (h) 598-0085 (h)
Ms. Betty Huffman, 9301 Meadow Vale
Austin, TX 78758 512/459-2612 (w) 5121339-0832 (h)
Mr. Jim Parker, 2708 Aurora
El Paso, TX 79930 915/541-4643 (w) 915/564-0544 (h)
Ms. Margaret Robinson, 4700 Virginia, 1118
Amarillo, TX 79109 8061353-3616 (h) 806/352-1500 (w)
Mr. Kevin Patrick Tracy, ARC/Texas, 833 Houston Street
Austin, TX 78756 512/454-6694 (w) 512/452-5817

NON PROFIT ORG.
U.S. POSTAGE
PAID
AUSTIN, TEXAS
PERMIT NO. 1466

Coalition of Texans
with Disabilities
Post Office Box 4709
Austin, Texas 78765
(512) 443-8252
ADDRESS CORRECTION REQUESTED

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